Thursday, November 19, 2009

Prostate Journey. No, it ain't Cancun.

Nov. 18, 2009
A lot has happened since I posted an update on our prostate journey. I say ‘our’ because even though Sandi doesn’t have one, I share. We’ve just about eliminated surgery. No, let me rephrase that, we’ve eliminated surgery unless we receive news that all the proton and radiation facilities in the United States are no longer in service. It seems that surgery offers the most complete evisceration of one’s prostate problems complete with the most devastating side effects. I would like to choose to not wear a diaper. Gonzo may look good in a diaper, but I don't. Personally, I think I rather keep as much of my original plumbing and parts as possible.

The treatment that seems to be as effective as any of the other treatments and offers the least side-effects while leaving all of a person’s factory-installed parts and materials intact, with the added benefit of not installing radioactive material into a foreign body (such as mine) appears to be Proton Treatment.

At this point we’re pursuing Proton Treatment at Loma Linda University. It is one of only about five places in the country that offers this form of treatment. The downside is the fact that it means spending at least 8 weeks down there complete with being away from home, negotiating living arrangements, transportation, groceries, and just being there. Did I mention that I do not look forward to spending 8 weeks there?

I just received, on Nov. 17, my latest Prostate-Specific Antigen (PSA) results back from the doctor of the blood draw I had last week. My first elevated PSA number, and the reason that this journey started, was about May 22, 2009. It was 4.8, which is an indication of prostate cancer, but without a biopsy it is only an indicator. I had a biopsy done last July where two of twelve biopsies came back positive for cancer. Today the doctor called and told me that the blood-work results came back with a PSA number of 8.5. So, it has risen 3.7 points in about 6 months. From what I read the PSA number is a controversial indicator and there are a number of factors that have an impact on the number, mainly any kind of strenuous physical activity. Hopefully that includes paddling a kayak and thus would mean that’s where the increased number came from instead of a growth of the cancer.

Today I made contact with Loma Linda and was told that the Blue Cross had OK’ed the consultation and they were submitting paperwork for the procedure. They have tentatively scheduled me for a consultation the week of January 25 with the 8 week treatment to start the following week. At this point we are figuring on me going down there then.

So, I guess the message here is, if you know a man, or a man that knows a man, or a woman that knows a man, or a man that knows a woman that knows a man tell them to get their bloodwork done and ask for a PSA test.

Jim

I have a new student in my class. Somewhat small but definitely the best looking one there. Yes, I'll have to break him from putting his fingers in his mouth.

8 comments:

Anonymous said...

Jim, never mind ill see you tomorrow sometime.
Dick

Sandi Hooper said...

Dick if we're not here, we're at the kids' watching "Survivor"--the little house is ready, I think? Come on in and make yerself to home. 'Cuz you are...

Dick said...
This comment has been removed by the author.
Dick said...

theres no place like home!!!
im not sure when im leaving in the morning, but probably when i first get up.

Peter said...

Thanks for the news. I was wondering what procedure you'd decide on. When my PSA came back high, I pretty much decided on the roto-rooter. Thankfully I didn't have the big C, so it was a moot decision. We'll be looking forward to hearing what those in Loma Linda have to say. Keep us informed.

other said...

If radiation treatment is necessary, there is CyberKnife in Reno that I hear is supposed to be very good. As it seems you may have it in one area that might be something to check out also. It is where they shoot specified radiation at certain areas which is supposed to be more fine tuned that what they gave Ben. If we had know about them before the first surgery we would have tried them. Well, also if it hadn't been an emergency to get him in. One of the things they show on the commercials is the treatment for prostate cancer and it does not involve cutting you open.

Hope things go well at Loma Linda. My prayers are with you. Love to all.

Hey Dick. Have a safe trip.

Illa

Lili and Jess said...

Jim, Jess' neice works at Loma Linda, I will have Jess send you her information, she is a his sister's daughter,....

lueria said...

thanks for the info. I have been wondering how you were doing. Stay strong we love you, know that.