Well, Ben is definitely going home on Tuesday come Hell or High Water. The Case Manager is ordering us the stuff to take with us. Hospice is going to set us up with what ever else we need. He still isn't eating much but he wants to go home. So we will go. Plan is still to make it to the coast but have to set things up for that. So will let you all know when we get it figured out.
He did eat a little better today when I told him we were going to go home. He also walked out to the trailer 3 times today to watch the rain. He still has his back pain and the migraines but just the thought of going home is cheering him up. So we are off like a herd of turtles. Slow going but we will get there eventually.
Will talk to you all tomorrow. Love Ben and Illa
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11 comments:
Can't wait to see you both. And anyone who can make the trip, you're welcome to use our place as a rendezvous spot. We look forward so much to seeing you again. Jim is craving a good visit and I will be smiling from ear to ear.
Wow, this is good news, I think. A herd of turtles! Well that's progress. Let us know how the weekend goes. PnK
GREAT!!!!!! He will do better and I am so greatful he get's his way!!!! He's better in your care, Lisi will be so happy, see you at jim's and sandy's with Lisi, she wants to see her brother outherwise we'll dig our way to you with her, laugh. Love, no way would I see myself in those places, after dealing with places like those, better care at home, etc., I back Ben on this, it not a place I would put my worst enamy.
It rained here all day yesterday. I guess it rained hard enough during the night to wash away all the dirt collected around the vent over the bed. Woke up with a wet bed. Put a pan and a towel there and moved to the other side and darned if I didn't turn over during the night and put the blanket over the pan. Thank heavens I brought extra blankets. So this a.m. I tried different levels on the trailer to run off the water better. Slowed it down but now have 2 drips. It had been doing really well with the rain. Oh well, guess that is the way it goes. When it rains it pours!
Now that it has rained some, it can stop so the roof dries out and I can get up there to put some sealant around it.
ben and Illa, hi, this is Lisi. There is nothing like home, home is where the heart is and your loved ones. There is no reason why you can't die at home, as they have so much out there in the programes and you just meight live longer. Because you are in a more positive atmosphere, and not around sick people, hospitals can make you sick, as they do with me. I made arrangment for me to be home, if I could I'd be the eight with you, helping you. I love you Ben, with all my heart and Illa, and behind you 100%, coming to see you, as soon as possibe when you get to your location where ever you are, just let us know. What ever you need, if I have it, it's yours. You live longer and get better in your own home or with family. Just let me know when I can come, so you can see how well I am doing, Suzanne and Lili are behind my back, to make sure I have issues my way, also Ben I want Suzy as my guardian, because she'll make sure I'm not placed in the hospial, make a safe place at home.
I am glad Ben is going to be able to go home...I know it will be great for his morale to know that it will only be a couple of days and he will be back where he "belongs." Illa, thank you so much for your faithfulness. It helps so much knowing that we can count on you in so many different ways. I sure will be glad to hear that you will be on your way to CC. Love you to both.
I am so glad Ben is going home or anywhere away from there. We were going to try to get down there, but I will hope to see you in CC .. keep us informed. I am so thankful for you Illa. Love you both.
The supplies should be in (Mon.) tomorrow that was ordered for us. Should something not get here, then they will have it special delivered on Tue. It would be nice if it was all here tomorrow. That means a busy night here I think. Lots of noise. So far pretty quiet right now. Will probably start about 4 am. Would be nice if could leave Mon. in the afternoon. Will try to do that if everything is here. Ben really wants to go home. Had a bad day today. He is very restless tonight. Still very much in pain even tho the Dr. upped his continual pain dosage. I try not to ask for more until he really needs it. I hate to see him so doped up. Not much more news. Will let you know if we get to leave sooner than planned.
Love Ben and Illa
I hope that all goes easy for you and it's not too painful for Ben.
Love, Jim
Well, the supplies did not come in. They can only give us stuff for three days out of their supplies. They said that we could wait for another day but we told them no. We were going home. Discharge time is 10 am. The wound team wants to do one more treatment which I am all for. They are going to do him first at 8:30 am or so. It takes them about 1 1/2 hours now to do a good job. It is really down from the first time of 5 hours. He still needs his pain push to tolerate it. Don't know what I will do at home for that but will see. Get a bottle of Jack Daniels probably. That's for me. :). So most everything is loaded and ready tonight. Didn't get the septic emptied like I wanted to tho. Oh well. Have to do it later at the coast I guess. I am going to miss the nurses. They were a big help. All in all, very good staff to my mind. They had good food but most of it I didn't care for. Their eggs were great tho. Shoot, now I have to back to cooking. No more meals brought to me.
Ben had a better day today. He got up and walked twice. Once out to where the trailer is. We sat and watched the rain for about a couple of hours. He kept dozing off. But he really enjoyed it. To bad we had to come in, but it got cold and windy and as it was it might have been too long as he really hurt by the time we got back. But at least he can sit up for several hours straight and that is what it will take to get home but then we will have the heater in the car so he will be warm. It is supposed to be snowing up our way and I am not looking forward to driving in it. Not ready. Ben is antsy tonight and said he won't sleep well which I had already figured. So the nurses are ready with some Ativan if needed.
So when you see a post next, we will be home and trying to relax. I know he will be happier there. Also, I can smack him when needed and not have to explain black and blue spots.;).
The turtles are making slow progress.
Love to all. Ben and Illa
im glad that ben got to be out in the rain for awhile. its always calming for some reason.
i was telling Jim earlier today that i hope the trip isnt too rough on him. well. also on you too.
i was wondering about the snow. if you guys were getting any yet. i know the snow level here is about 2500 ft.
Drive careful
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